Saturday, September 28, 2013

Feeding Update Friday: Week Four

It's been a great week for us. Monday we went to the Children's Institute for a follow up appointment.  They gave us an A+ for the month (which was a shock for me), and gave us some tips for the next month.  He did lose a little weight, and is back down to 22.5 pounds, but they gave me some ideas how I can calorie boost the things that he is eating orally.  

Greyson has been fighting a small cold, and we were nervous that it would slide back his progress.  In fact, the complete opposite has happened and he's doing wonderfully!  His poor behaviors are very few and far between, and we seem to have gotten our groove back.  Let's hope we can continue to be on the same page!

Foods that G has eaten this week:
Chocolate pudding
Strawberry banana yogurt
Vanilla yogurt
Plain yogurt with honey
Penguins
Pizza
Chicken noodle soup and butter
Goldfish Grahams
Milk
Juice

Total Intakes:
Friday: 3 ounces
Saturday:  4 ounces and 2 penguins
Sunday:  unknown (we were traveling and forgot to write totals down! Woops.)
Monday: 6 ounces
Tuesday: 7 ounces and 1 penguin
Wednesday:  7.5 ounces, 1 cheez-it, and 3 Graham's
Thursday:  8.5 ounces and a few bites of pizza (our golden day!)


Thursday, September 19, 2013

Feeding Update Friday: Week Three

This week has had it's ups and downs, but we've changed some things that have yielded mostly ups!  

I am giving Greyson more time in the morning to wake up and get activity before he has to sit in the chair and eat.  He wakes up, he gets some physical activity by bouncing on an exercise ball, going up and down the slide, pushing his mower around the yard, etc.  About an hour after he gets up, I'll sit him in his chair for some kind of sensory activity, usually play doh.  After 15 minutes, I introduce his food to him, and this routine has seemed to help some of the morning issues we were having.  He is still showing some avoidance to behaviors, but this has made a big difference in the tone of our mealtimes.  

One thing that we are seeing since coming home is a big change in Greyson's emotional state.  He's always been a very easy going kid who was able to rationally handle his emotions without getting over the top.  Since coming home, he has been super emotional, getting upset at the drop of the hat.  We a pretty sure this is due to all of the changes and new expectations of him, and are working him through this tough transition with lots of love and understanding.  He's getting upset at things that never upset him before, like getting tangled in his oxygen, getting stuck somewhere because he's out of cord, or sometimes for no reason at all.  We are working with him to take deep breaths when he is so upset that he can't tell us what is wrong, as well as staying very calm and just giving him hugs and love when he is that upset.  

It's a work in progress, as always!

Foods that Greyson has eaten this week:
Chocolate pudding
Vanilla yogurt
Strawberry Banana yogurt
Honey water
Juice
Puréed potato soup
Spaghetti purée
Ritz crackers
Penguin crackers (off brand whales)
Goldfish crackers
Pizza
Vanilla wafers
Butter bread

Total intakes:
Friday:  3.5 ounces, 10 nibbles of pizza. And 1 ritz cracker
Saturday:  2.5 ounces
Sunday:  6 ounces and 10 mL
Monday:  5 ounces, 5 mL, and 1/2 vanilla wafer, 1/16 piece of butter bread
Tuesday:  5.5 ounces and 7 mL
Wednesday:  6.5 ounces and 10 mL (golden day!)
Thursday:  5 ounces

Friday, September 13, 2013

Feeding Update Friday: Week Two

We began this week feeling a bit defeated, and I am happy to report that we have worked through some of our issues and seem to be ending on a much more positive note than last week.

At the beginning of the week, Greyson was really beginning to challenge us for his meals, especially breakfast.  There was lots of swatting the spoon away, yelling, and (ugh) even hitting me.  Those of you who know me personally know that in no way would I ever let my child get away with hitting me, let alone anyone else, so this was extremely challenging for me to work through.  There were lots of tears, lots of getting up to remove myself from the situation before I reacted (how I so badly wanted to, but couldn't), and lots of desperate texts to my husband for reassurance.  I've also troubleshooted with Greyson's SLP from The Children's Institute as well as Greyson's OT through Early Intervention and come up with several ways to help this new issue.

I've also come to the conclusion that Greyson needs some more time in the morning between waking up and eating, so we have come up with a new morning routine to hopefully get through this rough patch.  He wakes up around 9, and I was trying to feed him at 9:30.  We are going to try giving him at least an hour before getting him in his chair to do his sensory play and then mealtime.  During this hour, we are getting in some kind of fun physical activity.  Ms. Maria (OT through Early Intervention) brought us a fun slide to play with before mealtimes and Greyson loves it!

We had Greyson's feeding evaluation at York Hospital this week also.  While they seem like a great program, they just aren't able to follow the model set up by The Children's Institute (which we know is working), so we won't be going there for weekly therapy.  On the positive side of this, we are able to return to Greyson's original SLP because she is open to using CI's model for feeding!  Greyson will be so happy to see her again.

A few positives from the week:
     -we've got a solid plan to continue moving forward
     -Greyson is eating wonderfully for Shane in the evenings
     -we're beginning to expand food choices
     -we have made the decision to return to Greyson's original SLP for weekly sessions
     -Greyson has been much more interested in the foods that we are eating, and even scooped some very finely cut spaghetti with a spoon and ate it.   This is the first time ever Greyson has self-fed with a spoon!

List of foods Greyson has eaten this week:
     -stuffed shells and sauce
     -yogurt (vanilla and strawberry/banana)
     -whale crackers
     -goldfish (original and grahams)
     -cup of noodles (pureed)
     -chocolate pudding
     -grilled cheese sandwich and tomatoe soup pureed (it actually tasted yummy!)
     -spaghetti, sauce, and butter pureed to a fine chunky texture
     -graham crackers
     -juice
     -chocolate milk
     -yogurt drink

Total Daily Intakes:
     Friday:  5 ounces and 5 whale crackers
     Saturday: 55 mL (almost 2 ounces) and 4 whale crackers (very rough day)
     Sunday:  4 ounces and 20 mL
     Monday:  6 ounces and 5 mL
     Tuesday:  6 ounces and 15 mL (our golden day!)
     Wednesday:  3 ounces and 20 mL and 3 Goldfish grahams
     Thursday:  5 ounces and 20 mL and 1/8 graham cracker

OT session before mealtime

Monday, September 9, 2013

Mommy Wars: Stay at Home Moms vs. Working Moms

I've had the idea for this post for quite some time, but finally decided I was going to write it on a recent trip to the mountains with my husband's family.  We had some quality lady time, where we got to chat about being a wife and mother, and with three generations present we got to discuss how it has changed for women over the years.  Life changes, that's certain.  But one thing that perplexed all of us was the concept of Mommy Wars.  Do a quick Google search for "Mommy Wars" and you'll find yourself bombarded with a host of opinions on certain "hot button" topics, many putting down their opposition.  On second thought, don't.

What I learned during our mutil-generational conversation is that this mom vs. mom scenario didn't seem to play out as much in past generations (not that it didn't play out at all).  My mother-in-law and her mother were shocked to hear some of the things that I've seen written on social media groups concerning stay at home moms, working moms, breast feeding, formula feeding, pumping, cloth diapering, vaccines, circumcision, co-sleeping, etc.  They told me that most women did what they did for their kids and family and almost never had to justify or discuss these decisions with anyone besides their family members.  What's the change?  I've already mentioned it:  social media.  

Social media has given us all an outlet to write whatever we feel like, and lets face it:  when you become a mother, it usually consumes every part of you.  You begin posting pictures of nothing but your children and updating statuses with each and every milestone your child meets.  You join groups of women labeled as "support" groups for moms to come together, ask questions, bounce ideas off of each other, and even vent when their day has gone completely awry (which happens much more often than any of us care to admit).  The premise of groups such as these is fabulous, and I've gotten an insurmountable amount of advice, help, and encouragement from my involvement in them.  I've also seen and been on the receiving end of some pretty nasty comments regarding a difference in opinions.

One of these "hot button" mommy issues is the stay at home mom vs. the working mom (and then you have the work-at-home mom, which throws a major wrench into everything).  I'm not going to go into the reasons that some moms choose to stay home and some moms choose to work.  We all know these reasons.  The problem is that some women feel that their own choice is the correct choice for every family, and they choose to put down other women for doing things differently than them.  

As mothers, we want what is best for our children and families.  Can we not agree that what is best for one family is not best for another family?

I posed these questions to my Facebook friends and followers:  If you are a working mom, what is it that a stay at home or a work at home mom has that you wish you had?  If you are a stay at home mom, what do working moms or work at home moms have that you wish you had?  If you are a work at home mom, what do stay at home moms or working moms have that you wish you had?  Disclaimer:  I am not pretending that these results represent the feelings of all mothers.  These results are from a group of women who chose to answer my questions in one little part of the world.  

Working moms longed for one thing:  time.  Time with their children, time to see them learn new things, time to see them hit all of their milestones, time to play with them, time to teach their children the way they want to teach them.  After working all day, many working moms state that they still have to maintain their household, cook dinner, and get the kids ready for bed, leaving little time for quality interaction with their children.  It's not that they don't want this interaction, they clearly do.  It's that there isn't enough time in the day.

Stay at home moms wished for a few things:  adult social interaction, more appreciation for the work that they do.  Some stated that they felt completely shut off from the world, and missed the adult interaction they had when working.  Many felt under-appreciated, and that the work that they do at home isn't valued as highly as bringing home a paycheck.  They even felt guilty for not contributing to the family financially, even though they themselves value the work that they do at home.

Work at home moms felt simlarly to stay at home moms in that they wished for more adult interaction, but also a more private work area.  

There was one common theme among most of the moms:  they all were doing what worked for their own family, and thought that the sacrifices they were making were worth the benefits of whether they were working outside the home or at home with their children.  What is considered a benefit to one mother, was not considered a benefit to another mother.  We all have differing opinions, and that's what makes the world interesting.  Someone's opinion can not be wrong or right.  It is how they feel about something.  You cannot tell someone they are wrong for feeling the way that they do.  

No one likes to be attacked for their parenting choices, or any choices for that matter.  Social media has exploded our opportunities to share our opinions, and therefore opened us up to the many criticisms that come along with it.  It really is as simple as this ladies: what works for your family may not work for another family.  You can have an opinion, and state it clearly and without judgement of others.  There's no reason whatsoever that we should be combating each other for the ways we individually choose to raise our children.  We should, instead, be loving and supporting each other for choosing what we think is best for our situations.  


Thursday, September 5, 2013

Feeding Update Friday: Week One

Our first week home has proven to be a difficult one.  When we left the Children's Institute, Greyson was eating between 5 and 7 ounces orally a day with very little behavioral issues during mealtime.  Now that we have gotten home and are trying to settle into a routine, Greyson has reverted to using some of his favorite poor mealtime behaviors, as well as a few new ones.  His intake is still good considering just 3 weeks ago he wasn't taking anything orally, but it has been decreasing

We are really struggling with Greyson flat out refusing to take a bite of food.  He's doing lots of swatting the spoon away, crying, covering his mouth, and yelling "No! Stop!".  We've had to get very creative to try to continue his progress, and we are hoping to begin seeing some improvement soon.  It's been incredibly frustrating for Shane and I, but we haven't and won't be giving up.

List of foods Greyson's eaten this week:
     -vanilla yogurt
     -chocolate pudding
     -pureed macaroni and cheese
     -pureed stuffed shells and tomato sauce
     -pureed chicken and dumpling soup
     -vanilla yogurt drink (half yogurt, half whole milk)
     -goldfish crackers

Total Daily Intakes:
     Saturday:  5.5 ounces and 3.5 goldfish crackers
     Sunday:  8 ounces and 3.5 goldfish crackers (Our golden day!)
     Monday:  6 ounces and 10 mL
     Tuesday:  3.5 ounces and 1/4 sheet graham cracker
     Wednesday:  5 ounces and 3 goldfish crackers
     Thursday:  3.5 ounces and 3.5 goldfish crackers

PS.  Is anyone else as jealous as I am that I can add butter or oil to everything Greyson eats?  I fondly call it the Paula Deen diet:

Tuesday, September 3, 2013

Coming Home

The end of our (possibly first round) intensive feeding therapy went really well.  Shane came Thursday evening so that he could meet Greyson's therapists and see them in action.  We were nervous that throwing Shane into the mix was going to throw Greyson off of his game, but it totally didn't.  He showed off and did really well on his last day.

We got very specific instructions from his therapists about how to continue his progress at home.  Both of us are aware that there may be a "transition phase" and Greyson may back track on his progress a bit, and/or revert to using some of his problem behaviors during mealtimes.  While this scares me, I am actually leaving the program feeling confident that I know how to handle these issues now.